This is a charity event, in honour of Brooke Connell, who was diagnosed with Fibrodysplasia Ossificans Progressiva (FOP) when she was 6 yrs old at CHWO. FOP is a cruel condition that, due to a short circuit in the body’s wound repair system, attacks skeletal muscles and connective tissue replacing with bone, fusing joints and making even the simplest movement a workout. FOP usually expresses itself early in childhood and many are misdiagnosed with cancer and resulting biopsies exacerbate their condition.
Money raised at this event goes to the Canadian FOP Network (CFOPN), a registered non-profit 100% volunteer run charity, to increase awareness and to fund research. Through grass-roots events across Canada, we have raised over $800,000.00 to date and fund $70 - $90,000.00 annually for research. We are proud to have hosted three Canadian FOP Family Conference & Medical Clinics in London, ON. At our last conference, our Canadian families partnered with Clementia Pharmaceutical and the international FOP specialists to film a CAJIS training video, to be used globally as a standardized reporting tool for FOP clinical trials and other disabling conditions.
contact Vicki Rawski 519-852-9441 or firstname.lastname@example.org